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Subject :     NEW FORUM for congenital heart defects

Posted by webmaster 
 Sujet : NEW FORUM for congenital heart defects      
Auteur: webmaster
NEW FORUM FOR C.H.D
This new forum is the forum for children,parents, adults with CHD, and family members of children who have Congenital Heart Defects in the world .
Interested health professionals are also invited to participate in discussions.
Have all a great day
DAUMAL Christian dad of Gaelle (single-ventricle)
President and webmaster of the "heart and coeur" website
[www.heartandcoeur.com]
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: jollivee
Thank you sir.. I have a question.. What could be the possible risks why some infants are born with congenital heart defects? [doctorfinders.com]
 Sujet : We kindly ask for your advice      
Auteur: Cristian Chirila
We are a young family of doctors and have a 2.4 years old son who was born with critical isthmic coarctation of aorta, secondary pulmonary hypertension, tricuspidal insuffiency III degree and aortal bicuspidy.

He was operated and the coarctation was corrected in the first 12 days of life in Cluj Napoca at the Cardiovascular Institute through an head-to-head anastomosis.

The post-operatory evolution was very good, and by the 6, 12, 18, 24 months controlls an progressive aortal stenosis was observed.

At this time, the gradient is 110 mm HG at the highest level and at 70 mm Hg at the medium level.
The ejection fractio is 70%. The left ventricle is not dilatated, but with a concentric hypertrophy.
The ascending aorta is constricted at the sino-tubular level.
Pulmonary insufficiency I degree was noted.

The child is very well clinically, the effort capacity is very good, he doesn’t have any sign of illness, and is very smart.

We are proposed now to operate him because of the gradient of the aortal stenosis, who involves the 3 levels, below, middle add upper in the form of a clepsydra but the riscs of needing a pace-maker was told to us is very very big.

Our concerning is about these high risks, and we would like to ask if there are other options or techniques with lower risks in this situation.

For your kindness, thank you

Cristian and Mihaela Chirila, Oradea
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: Helen Hamilton
I'm trying to contact Lorraine. I'm from South Australia & have spoken to her on the phone several times & also had a discussion with her lawyer. We lost contact when I moved house
Please can you direct me how to contact her?

Thanks
Helen
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: drrajesh (October 18, 2009 08:17AM)
Dear Sir,

my freinds son is 6 month old and he has AP window 7.8 mm , what is his treatment and prognosis about this congental defect

regards

Dr.rajesh kumar
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: lorraine
not sure if i am the lorraine you need to speak to. but i may be,
kind regards lorraine
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: rosemais
webmaster Wrote:Hi - Mya daughter has just been diagnosed with a 7mm ASD heart defect - She is not gaining much weight and has continual colds/blocked nose/cough - The doctor has recommended surgery closure as she is now 16 months old - but when would this happen and at what age?
-
> NEW FORUM FOR C.H.D
> This new forum is the forum for children,parents,
> adults with CHD, and family members of children
> who have Congenital Heart Defects in the world .
> Interested health professionals are also invited
> to participate in discussions.
> Have all a great day
> DAUMAL Christian dad of Gaelle (single-ventricle)
>
> President and webmaster of the "heart and coeur"
> website
> [www.heartandcoeur.com]
 Sujet : Re: NEW FORUM for congenital heart defects      
Auteur: Helen
Lorraine ... is your son Peter ?
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