Sujet : Re: Ebstein s Anomaly Valve replacement      
Auteur: Wes (November 02, 2008 12:47PM)
Dear Alison Nice to meet you on this forum, Like your son Ben Gaelle our daugter has a Single Ventricule - just left ventricle without right ventricle - Situs solitus-Transposition of the great vessels-Atrial septal defect- Atresia valve atrium - ventricle - Coarctation of the Aorta-Hypoplastic aortic - Today Gaelle is 13 and a beautiful girl,but gaelle had five important surgery to repair her heart and maybe another in the future I would like never but ... The last surgery was from a TOTAL exclusion of the right heart by interposition of a tube core-tex between the IVC Inferior Vena Cava and the pulmonary junction after plastie of the junction. Now Gaelle is pink with a saturation near 95per cent and she is brimming with life,she does bicycle with her brother Adrien, swimming, dance etc... We Gaelle's parents are happiest... we live in Paris France. For me it is important for all to be able to help itself between us in the world, to exchange ideas,and to compare impressions. How old is your son? I look forward to hearing from you. Christian-Maryvonne-Gaelle-Adrien
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